Drove up, signed papers, came home.
While there, I saw my dad. Eventually, we will go over everything. But today, I only want to talk about two or three things, so I don’t forget them.
He has lost so much weight he looks like a different person. Or perhaps more accurately, a yellowed skeleton, an animatronic of what my father might look like, were he caricatured by mean-spirited puppeteers to be a guest host on HBO’s Tales From The Crypt.
I don’t mean this to be cruel, but more like every visual cue, even those I’d never consciously been aware of, blared: Death. Death is here. But still my father.
He seemed distressed to see me, but also caught in a dream. You know that expression people get when they have the flu and are getting ready to throw up, but not quite rushing to the bathroom yet, their focus inescapably inward? It was like that. He was eerily lucid, speaking in complete sentences. This fact introduced when I said, “Hey Dad, how are you doing?”
And he said, “I am worried. I am going to die.” Or maybe it was, “I am worried I am going to die.” I guess it doesn’t matter.
Later, I told Middle I thought the important take away was that he didn’t say, “I’m afraid,” or “I don’t want to die.” Although those things are probably true, at least I can hold on to the fact he didn’t seemed desperately fearful, or terribly conflicted, just sad.
Dad complained his throat hurt, and we tried to get him to drink first water and then some root beer. Four of the five sips he took over the course of 90 minutes ended in him dry heaving into a trash can and spitting repetitively into tissue paper. Twice, he pinched his tongue the way a person does when they’ve got an errant hair in their mouth. I came away thinking he’s probably losing overall hydration by drinking. I guess that like terminal lucidity, with some dementias a person can feel as though their throat is closing up at the end.
On the drive home, it occurred to me that as bad as he looks, if they gave him an IV, he might still pull out of this tailspin. I was glad then, about the lucidity. I’m sure my mother will ask him if he wants to do that. It might make it easier, to have the option.
*
After the drinking and spitting had settled down, Dad got upset. “I had something to say.” He held his head in his hands, slouched over. I’ve never seen him make that gesture, like he was defeated.
“You mean to Natalie?” Mom asked.
Dad nodded. “The words are gone. Took my words. I had something to say.” He blinked a couple times, eyes watery. Head back in hands.
“Well you can tell her you love her,” Mom said after a while. Dad shrugged, nodded, still upset. Jeez, I knew that body language from my childhood. He was definitely not letting it go. The phone rang and Mom went to take it.
For the record, I have a lifetime of knowing him. I don’t expect there was anything he could’ve told me I don’t already know in some form. Also for the record, it’s weird being at ground zero of absolute nightmare fodder, the question of what he might’ve said, his despair at being right in front of me and unable to convey it. Maybe this is just the most important thing to know about life, that nothing ever wraps up neatly.
*
After a while of sitting in mostly silence, Dad’s focus seemingly internal, evidently listening to whatever your body tells you as the last guys in your shop are shutting off the lights, powering down the generator, and locking the door behind them (presumably leaving you in there, in the dark, by yourself. Wheeee). My Dad used to like to sing, and I’d read familiar music can be therapeutic for dementia. The only band I could remember my dad ever liking was Three Dog Night (in cassettes in his glove compartment).
I didn’t know jack shit about that band, but thanks to Youtube, I pulled them up and scrolled through their playlist. I recognized exactly one title and played it.
It worked pretty good. Dad was laughing and humming along by the end. Then mom came back, and it was OK.
*
When we got back from the lawyer two hours later, Dad was expressionless, nonverbal, no eye contact. His caretaker said Dad had taken no liquids or the ice cream she’d gotten out for him. Very gruesomely, but having just spent time with Mom and her grief, I suggested we all take pictures. So now I have photos of my mom and dad, and also me, Dad, and Mom together.
Each photo looks like one of those old Victorian memento mori photos (Hey, warning! That link contains photos of dead people). Dad’s alive in the photos, but the absolute stillness, the skin tone, the eyes that never reach the photographer. They say memento mori are creepy in part because the camera technology was so crude back then that the breathing of living subjects made them blurry while the dead were ethereally still. But I would argue that even on my fancy iphone X, there is a stillness to my father that modern technology can’t yet capture in the living.
After, I kissed him on the top of his head and said goodbye. Later in the car ride, I thought, “Jeez, that was probably the last time I’ll ever see him. Why didn’t I take a moment?”
Those are just thoughts to torture myself with, not reality. The truth is, we had a lifetime together. The truth is, whatever good or bad that needed to be said was done so long before this. And the truth is, it only happens one way, and so that was the way it was supposed to happen.
*
I am mostly somewhere between atheism and snooty disinterest with God since Little’s baby died. But also this week? The dog shelter emailed saying they knew I hadn’t signed up for it, but would our family be able to take care of a mom dog and some unknown amount of newborn puppies for the next two months? Like as soon as she whelps?
It might very well be a total disaster, smelly and maybe heartbreaking. Or the mom dog might be a mean, charmless feral thing who bites. But it’s also one of those weird moments where I thought, “I’ll probably never in the normal course of my life get a chance to do this.” So we said yes.
In a very strange but undeniably pleasant way, it feels like whatever God is out there might be a total fuck-all fuck-up, incompetent and powerless, needlessly cruel and full of laterdayzbitches! when it counts, but also maybe feebly lifted a finger and was all, “Hey Anne, I’m gonna make your life a 24/7 puppy gif for a while. So things are gonna get bad, but when they do? Maybe you can just lie down on the floor and let smelly, yippy fuzzballs lick your face and chew on your socks until you feel better.”
This does not generally change my atheism mindset, but it did make me feel better for a moment to think it. What a sucker I am.
PS: I have not replied to any of your precious emails or comments. I feel generally like Smaug (lookit me, fully two HOBBIT references in one post!), sitting on a pile of treasure. They make me happy! Or perhaps happy is not the right word. But something good. So generally bright-spot-in-stressful-world-good, in fact, that I don’t want to answer them. See, if I answer them, then the interaction is complete. If I don’t answer them, then I know I have to go back and read each one to respond. So like I said, I am sitting on them all, hoarding all their good thoughts for a second dose, knowing they are waiting for me. Cannot apologize or further explain. Just wanted you to know that’s what I’m doing.
I can’t say anything to make any of this better but you can picture me sitting with you through this, in a virtual way.
I will also tell you that for some reason I can never remember Smaug’s NAME and so I call him Flintheart Glomgold instead when I want to make a reference to a dragon hoarding treasure and now my whole family uses Glomgold as their dragon reference even though Glomgold IS NOT EVEN A DRAGON (he is a Scottish cartoon duck)
??
As I read through this, I thought, this is the most hopeful (ok, let’s say least depressing) post I have ever read about saying goodbye, especially a long goodbye.
I hope you understand what I mean. I see *signs* everywhere – I am not sure about god but I am sure of some presence/s, maybe they are just the spirits of lost souls. I see their signs everywhere, especially when I need them most. I think it is a gift (not easy to be sure, but still a gift) for your father to be as lucid as possible at this time. A gift for you and for your mom, especially. I absolutely think he was telling you that he knows his time is close and that he is as all right as anyone can be at this point in his life.
I hold you all in my heart, and sit with you, virtually, as Jenny said. You have a lot of hopeful hearts wishing you peace in this difficult time.
I am sending loads of love to your mom right now, too, because I don’t even want to imagine what this is like for her.
And if it helps, I will come and write comments every day.
*big hugs* for when you need to unearth your pile of gold.
My eldest is obsessed with gold and dragons, and someone got her a Funko gold dragon from something for Christmas this year, and *that* is among her most cherished treasures.
Puh-lease tell us you will post the puppy pictures. I would prefer those over the memento mori, just saying <3 Love to you and yours because it's hard through this part. <3
Here’s another treasure to add to your pile. It was only this year that I figured out Anne Nahm was a variation upon “anomymous” and if that doesn’t make you laugh at my cluelessness considering how long I’ve been reading this blog, I’m not sure what will (except clueless puppies biting socks, for sure!)
I can’t even spell anonymous. Geez.
Oh Anne, this part is so hard. I’m so sorry.
The music thing was such a good idea. I’m glad you had a nice moment, I hope that memory can supplement the less cheerful ones.
I am also thinking of you these days. We’ve got your back.
I have been with a lot of people when they died, and that helps me to know something comes after. Also, people aren’t afraid when they die. They may be afraid as they are moving towards it, but when death is close, they aren’t afraid. And many are already seeing where they are going next. I will hope for a gentle passing into the next life for him.
Also? While I appreciate the emails, you don’t owe me anything. So don’t worry about not responding. I’m just grateful you are sharing this journey with us.
I saw your tweet this morning my time.
Hoooooo boy, honey.
I’m really glad that you can feel like everything’s been said. You’ve certainly spent time with him. He knows and knew that you love him, and that’s huge, as you know.
It’s still so sad. Feeling like something’s at the end, and that you’ve genuinely done a lot of the right things, doesn’t take away from that. It’s still awful to lose your dad.
But it is good in itself.
When my mother died many years ago, it was freaking horrible because she was only 60 and she went through a lot of pain and fear and grief during the 7 months between diagnosis and dying. I’m sure she felt freaking horrible before that point, too. She had gall bladder cancer. She was living in another city, separated from my dad but still close with him. My two sisters and dad and I lived in three different cities between us, so it was a hike to get there but everyone spent time with her. I took my two kids down to spend time with her (third came along a couple years later).
It was absolutely awful at times. Mum knew why we were there, and while she was lovely about it she also hated it and was very upset about what she’d miss with all of us. She’d always been very self-sufficient and enjoyed her time alone. She also enjoyed being a good host, making sure that everyone had what they needed, and so forth. It’s hard for anyone, I think, to gradually lose the ability to look after themself, but it’s extra hard when it’s someone who’s relatively independent.
When she eventually went into hospital, all of us plus her sister and brother spent time in shifts in there with her. She was in a lot of pain and not always completely aware of what was happening around her, but she still managed to do things like offering my son one of the ice cream cups out of her little fridge that staff had brought her. I had my issues with Mum, growing up, some of which I’m still very much dealing with now. Her grace and care for others even in that situation was not an issue.
I miss her very much, but there was nothing left unsaid.
There was that same general feeling that you’re having now, of everything’s been said, and it can happen when it needs to.
It’s an awful situation. I guess I’m glad for you that you’ve had that warning, so you don’t also have a horrible shock when the time comes, and so you’ve had some time to adjust to the whole idea.
(I’m not at all glad for you that you and mom and your sisters – and your dad, and your husband, and everyone else, have had to deal with the circumstances of your poor dad falling apart, but I guess that’s a separate thing. I can be glad for the ‘good’ parts separately, while acknowledging it’s still really fucking horrible overall.)
Taking in the puppies is such a lovely idea, and it made me relive very pleasant memories of the two neighbour dogs that my mum used to take for walks.
I really appreciate you sharing all this with us, and of course you should take your time responding / not respond at all. Whatever you need.
Thinking of you.
Still here with you, and always wishing you peace.
I missed this post somehow but now I know how the puppies came to be in your life, and yes it does feel like a thing. I hope you’re sleeping. I hope you know how much everyone cares. Hoard all of it!