Every time I reread the last post (no matter which post happens to be last these days) I think: Fuckit in a Bucket, next post I SWEAR TO GOD I WILL HAVE MY SENSE OF HUMOR BACK. I will post Kim Kardashian Peeps (bunny body, duckface made from a an actual chick peep’s face, halved jellybeans around the corner for perfectly globular ass) Peezus West as sidekick… or something otherwise ridiculous.*
Instead, the steamroller of my parents’ lives comes right on through and I get flattened. And you get this bullshit instead. Enjoy.
Mom DID call me first this time. “Sorry I’ve been absent,” she said, which set me nervous immediately, because she hadn’t been absent – we’d talked a few days ago. “I’ve been low, but I told you I’d call, so I did.”
I knew (since we’d talked earlier that week) Dad and Mom both have had a chest cold-type illness. Dad’s ‘level’ goes down when he’s sick, which I’ve read/heard is typical of dementia patients. Mom was stressed because they’ve both gotten over the illness, and Dad hasn’t ‘come back’ yet.
She whittled down all the reasons he hasn’t recovered mentally. He might still be physically recovering, even though he appears well. Could be he hasn’t gotten enough exercise, or the medication hasn’t been properly processed since he’s been sick, but will build up again in his system. He’s not sleeping anymore, but that could be part of the problem, or cause. If she could only get him exercising, he’d sleep – but he won’t bike in the rain. If the doctor would call back, she could get information about Dad’s medications.
Dad’s forgotten who she is again. He doesn’t trust her. She forgot to pick up his favorite soap (they don’t sell it at Costco anymore, so she has to go to a new store.)
Mom paused mid-story to doggedly remind me, “Really, he’s right to be angry at me. Lots of people let their hygiene go, but he combs his hair every morning, and he likes his certain soap. You know, he’s fastidious. I’m really grateful. And he did ask me twice to pick it up. I just forgot.”
Anyway, he called her selfish, and accused her of taking care of herself and not him. Which is so Opposite Day it’s practically the catch phrase for a tragedy. “It’s hard that he treats me like a store clerk. You know, if he remembered it was me, he’d say, ‘Well come on, let’s get in the car and go pick it up together.’
“He remembers you, Natalie, and he even remembered you were 40,” she says, surprised. “So I asked him who your mother was. He knew after a moment I was your mother. When I put it all together – that his child was 40, and I was his child’s mother, so he must know me – he got angry and accused me of leaving him.” That part really broke my mom up. When I pressed her, she said, “He used to respond to logic. Now it’s like his mind is making up a story that fits the deficit.” And then, “I shouldn’t have confronted him.”
He wouldn’t let her open the house blinds. She thinks the trees in the yard, with their spring leaves swaying in the wind and casting shadows, gives him hallucinations. He sits in the dark. He can’t tolerate the TV on. He won’t let her go to new stores – even as they are driving, he gets disoriented by unfamiliar roads and wants to go home. He will still go to the grocery store, so she can get him out of the house once every day.
“It’s gone back to the worst it was, like how he was when we first moved here,” she said.
Hopeful, I said, “Well what happened that fixed it last time?”
She sighed. “He got on the medication he’s taking now.”
“Maybe he’ll get better,” she said about five times. “He could still come back.” It’s been a week. But he’s always had a fall-off-a-cliff style of decomposition. And holding out hope someone with dementia will get better feels like it’s own craziness, or at least deep and abiding denial. He may come back for some amount of time, but this is where it’s headed.
She is so exhausted/dithered/perhaps dealing with her own slips, that she asked me twice if she’d told me a story she’d recounted earlier in the conversation. She talks the way a bird with a broken wing tries to fly.
“Do you want to come down here, maybe stay in the beach house for a while?” I asked.
“He won’t tolerate that.”
“Do you want me to come up there? Maybe having a familiar face….”
”You know how when kids get sick and they are bored, having a distraction helps?” she said. “He’s not like that. He’s like a kid who’s so sick they stare at the wall. He’s just very fragile right now.”
PS: To tack on to the horror show (so whee, perhaps I will finally get it out of my system and next time talk of Peeps), I forgot to put this in earlier, but recently she commented, “They say the grace of dementia is that at least the person doesn’t know what’s happening. Not true with your father. He knows what’s happening to him.”
*The only benefit of Peep Diorama Failure is I don’t have those cursed peeps around the house. They taste like ass made with ass juice and dingleberry filling. Also, eating one makes my body feel like it’s instantly leveling up to Type II DIABEEEEETUS. ETA: Just watched 15 Wilford Brimley Diabeetus clips to find something funny for you, and dear God, I’ll never get those twenty minutes of my life back.
PPS: Some kind. lovely, thoughtful readers were concerned I had inadvertently left my real name in paragraph 9. It’s there on purpose, helping me inch my way toward being out in the open.
Holy crap. Wow.
I want so badly to give you some kind of supportive insight here. Something to make you feel a tiny, tiny bit less awful. But I got nothin’. Didn’t want to stay silent. But wow. That’s just a crap sundae with crap on top.
I am in lots of ways more worried about your mom than your dad. Which is easy to do from another country, of course. (I.e. I’m not saying that YOU should necessarily be more worried about one than the other.) He’s certainly suffering, but she’s depleting herself so hard and seems to have very little positive nice stuff in her life.
The justifications she’s making (“I should’ve remembered about the soap” and “I shouldn’t’ve confronted him”) are awful.
Gods it must be hard for you to listen, to get dragged into this miasma she’s stuck in with your dad. I feel for her, and you, and him.
I would love to just respond to your post, but I can’t because I gotta tell you I think you used a real name paragraph nine.
much love and sympathy
I’m so sorry. Youre doing such an incredible job dealing with all of this. It’s terrible and bad and wrong and shouldn’t happen to anyone. I know it’s not much, but I hope it helps a little to know that a complete stranger thinks about how you’re doing and looks forward to your posts, even though they’re not funny.
We have known your name for some time, because you told us months ago (year or more).
Now what can we do to help? Anything? Nada?
Probably not. I feel myself that I am in a completely un-helpable situation (husband is in last stages of ALS), and people keep asking “what can I/we do to help?” There isn’t much for us (unless you want to help someone-else’s husband pee into a plastic urinal at 3:00 p.m. please contact me if you are a registered nurse living in the area of Frazer, PA), but it does help to talk about itwhatever it is.
hugs,
Jan
I’m so sorry. It sounds so horribly demoralizing, to watch someone fall apart and to not be able to just step in and FIX IT. We are so trained to want to fix things; listening just feels like doing nothing.
When I am talking to people who are talking in circles or missing the elephant in the room, it can help to summarize for them what they’ve said, even echo back their own words. From here, it sounds a bit like your mother is slowly reaching the point where she might consider allowing in help – but oh, the suffering she (and all of you) are experiencing to get there.
I’m sorry. Please don’t apologize for being short on jokes, we certainly understand. (And thanks for the postscript, I too was concerned!)
Hugs to Jan, too, because oof, that sounds hard.
Oh, the peeps. They do taste like gritty ass.
Sounds like you have enough gritty ass doings in your life right now. No loss!
I have no words of my own or others to motivate, inspire or soothe. But sometimes I come upon something from Rumi which is not really a lesson, but some philosophical bit that I don’t really understand … here’s one …
I am smiling at myself today
There’s no wish left in this heart
Or perhaps there is no heart left
Free from all desire
I sit quietly like Earth
My silent cry echoes like thunder
Throughout the universe
I am not worried about it
I know it will be heard by no one
Except me.
~ Rumi
I love Peeps, but I won’t hold that against you.
Dear god, this woman needs to call hospice. I know it’s a huge step, and oh so hard, but if she would try it she would be so grateful for the support.
And aye, your poor dad.
Oof. I’m sorry friend.
I ate 5 peeps today (they’re better stale). It’s straight-up sandwich generation stress-eating. That eye twitch you mention in the prior post, I also have it.
Though our families have different stuff going on, your words always resonate. I don’t know how you could be more out in the open– and I really appreciate that you are.
Sending you kind thoughts.